Tag Archives: Cancer

The Surreal Zone

crazy mirror

I generally ignore the TV, but I happened to glance up the other day and was alarmed to learn that my hair is not shiny enough, my towels are not fluffy enough, my bed is full of bacteria and my shoes are stinky.

Although the hair is a lost cause at this point, my mother always told me the rest of those problems could be solved with cider vinegar;  perhaps times have changed. Apparently, if I steep myself in magical chemicals that come in brightly colored bottles, all these horrors of the human condition will disappear and I will be blissfully happy.

Well, that’s a relief.  I’ve got enough to worry about.

Case in point: When I asked my doctor how we know that the chemotherapy is working, he patted my knee, smiled and said, “We don’t. If you’re still alive in five or ten years, then we’ll know.”

I understand that doctors would rather not commit to anything, but I did read somewhere that losing my hair is a good thing, a silver lining, because it means the chemo is working. I may have written nice things about silver linings, but that one is a stretch, a tarnished, scratched and dented one lying under a pile of moth-eaten sweaters and mismatched socks on a rickety card table at a garage sale, because while the chemo monsters are, hopefully, gobbling up evil little cancer cells, they are also gnawing away at my immune system and doing their best to annoy many of my tender bits. In self defense, I have to paint my nails, use cuticle oil, moisturize from head to toe, figure out how to draw eyebrows, try to come to terms with hats, wigs and scarves, re-think my diet, re-learn how to do yoga and be very, very careful about how hard I push myself. Someone took my mirror and swapped it for a fun-house one that only reflects warped and distorted images. I have stepped through the looking-glass and landed in The Surreal Zone where nothing is as it was. Strawberries taste like oranges. Puppies speak Spanish and kittens speak French. Two plus two equals five. The Donald is my best friend.

Despite all of that piled on top of what the TV might have to say about my woeful inadequacies, a very kind friend pointed out that even a unicorn can get split ends in her mane and an occasional chip in her horn but she’s still a unicorn. Perhaps she’s a bit tarnished, scratched and dented, but then, aren’t we all?

So I have good days and bad and on the days when the bad is more than the good, there are butterscotch brownies.

butterscotch brownies

Fallout

When I was born, I had bright red hair, just like my grandmother. Or so I am told. In one of life’s petty cruelties, nobody bothered to take any baby pictures of me. On the other hand, my mother says I came out bright red and screaming, covered with a rash to match my hair. Several of the delivery room nurses ran away screaming. One of them fainted. Maybe I should be grateful that there aren’t any pictures.

Six months later, my mother picked me up out of my crib and my flaming hair remained on the pillow. I am told I was bald for a few months, then my hair grew in pale blonde and straight as a board. By high school, it had started to darken and curl and by my late twenties it was its current somewhere-between-blonde-and-brown. A few years ago, Mother Nature started tossing in grey as well. Tokyo humidity gives it a texture that varies from corkscrew to afro. Most of the time, I like my hair.

Now it’s falling out again, thanks to the toxic waste being pumped into my arm each week. Knowing this was coming, I got it cut very short a few weeks ago, thinking that would make the transition easier to handle. It didn’t. The change is devastating. It’s not just vanity; there’s more to it than that. They’ve taken so much from me already and they’re still not satisfied. Now they want to take my hair and, along with it, the last shred of my privacy. Unless I get a few tattoos and some extra piercings, I don’t have an exotic enough look to pull off bald, so the fact that I have cancer will follow me around like a spotlight on a darkened stage.

Sharing that stage with me is Anne Frank. Her story is currently in production and opens next week. I spent Sunday making aprons for her mother and the other woman who shared that spartan attic in Amsterdam.

aprons

As I sat there stitching and shedding, I thought about Anne and her family and the millions of others who were devastated by that war. I’ve seen pictures of women in the camps, naked, their heads shorn. I have no business likening my situation to theirs.

My yoga teacher started our last class with a quote from Richard Bach: “There is no such thing as a problem without a gift for you in its hands.” I am a firm believer in silver linings, in trying to be positive, in always looking for the good, even if it means having to look really, really hard.

I also believe in gratitude, in reminding myself each day how lucky I am. I have so much: plenty to eat, a warm bed, family, friends, money in the bank. And it was not so very long ago that a diagnosis of cancer was a death sentence. So I should be grateful for that, too. I should be grateful for the bounty in my life and that I was born as who and what I am, grateful that in my life, at least, there has always been peace.

I will try, but deep inside me there is a red-headed, red-faced baby banging her fists and heels against the floor and screaming in protest. I think I’m entitled to that.